Hepatitis B in Nigeria: discussion thread

@ThomasTu,it’s really sad to know that Johnpaul’s condition is at this stage of a liver transplant. I just spoke with him and according to him, his consultant hepatologist is certain he needs a transplant. This procedure is a very expensive one and would have to be done outside Nigeria.
What can we do to help our brother get back on his feet again. He can hardly sleep as he said and its very worrying.
@Janefrancis, and other Nigerians who are on this platform, I’d like for us to all connect. @ThomasTu would be kind enough to avail us a sub-space here. We need to step-up our collective efforts to addressing hepatitis B in Nigeria. 20million is no joke and together, we can mount pressure on our government to care about our health. Thanks.

+2347066233745
Prince O Okinedo
Founder/Team Lead
Hepatitis B Advocacy Initiative Nig.

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Hi @Prince_Okinedo,

Thanks for this update and glad that you’ve been in touch with John Paul and sorry to hear about his condition.

I am happy to have a dedicated thread to Nigeria (shifted this post to it), and expand to a sub-forum if it increases in use.

Cheers,
Thomas

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It’s really sad to hear what Johnpaul is currently going through. Traveling out of Nigeria for a liver transplant is no easy task at all, but might be doable.
I’ll call this number here to speak with you to know in details what’s going on with Johnpaul.
What time of the day is good for you?

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Thanks @ThomasTu for this. I had a chat with our brother this evening to reassure him, and to further strengthen his hope of coming out of this.

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Thanks Dr. @Janefrancis . I and a friend in the U.S through the Hepatitis B Foundation are trying to eßalate John’s situation the the federal government. We are hoping for the best.
I’ll be expecting your call anytime from 9:00 a.m tomorrow.

I’ll call you right away
Thank you

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If someone had told me I would receive the help I am seeing here from this platform, I would have
doubted.
I’m tearfully appreciative of it. May you be blessed one by one for this. Though I was fed up with life and everything, but the hope you bear rubbed off. Thank you all

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@Johnpaul_Ezeike , we are glad your hope has rekindled. As I will always say, the virus does not define who we are. We are all praying for you and hoping for the best as we rally support. Please, continue to keep strong. We’ll keep reaching out to you.
Please, again, I’d like ALL from Nigeria to kindly reach me on +2347066233745. There is need for us to all keep in touch as we collectively mount pressure on our government. Together, we can win this war.

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Is this your contact WhatsApp?

Yes

Prince O Okinedo
Team Lead
Hepatitis B Advocacy Initiative

I think those of us in Nigeria hep B should form a very strong forum to help ourselves in this regards. I wish Johnpaul a quick recovery.

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Thanks @Bolad. I had earlier put out this call or all persons living with HBV on this platform. There’s now a WhatsApp group. Send me a message on +2347066233745.

@ThomasTu,@ALL.
With a heavy heart that I announce the passing of Johnpaul. He couldn’t make it through. His last days were

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Pls to all Nigerias on this plat form.doctors,pharmacists pls Can someone help with getting entecavir o.5mg cheaper.it is becoming very stressful here in kwara state to get this drug.making it freaky expensive.I normally buy 3 to 5 month supply.

Hi @Dell,

I’m wondering if @Prince_Okinedo might be able to provide some insight and possibilities to help you out.

Cheers,
Thomas

Yes thank you for your reply.the WhatsApp number he gave the other time is not responding.

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Thanks Thomas. Hello @Dell. It’s good to know you are here. Entecavir as much as I know is very scarce in Nigeria. I suppose the Entecavir is for you right? If so, I’m not sure if you have any contraindications for TDF. I’d suggest you discuss with your Physician to possibly switch over to TDF or TAF as they are relatively available (especially TDF). I hope this helps in a way.
Feel free to email on okinedop@gmail.com if you have any concerns. Best regards.

Pharm. PRINCE O OKINEDO (FACi)

Founder/Team Lead,
Hepatitis Advocacy Foundation
www.facebook.com/hepatitisadvocacyfoundation
+2347066233745
Member,
Community Advisory Board (CAB),
Hepatitis B Foundation.
www.hepb.org
Member, National Executive Council of Civil Society Network on Hepatitis in Nigeria (CiSNH-Nig.) - Patient Voice Rep.
Chairman, CiSNH-Nig. C’ttee on Advocacy

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Hello! I’m newly diagnosed, I need someone to talk to.

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Hi @Oyindamola_Okunola,
Welcome to the community and I am sorry to hear about your diagnosis. This might be a piece of difficult news to process, I bet. We are here, if you have questions please do not hesitate to ask. We will do our best to provide support and guidance as you go through this process/journey. Bansah1

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I believe that one morning in the near future, when I open HepBCommunity.org, I will see a message written by you: You have cured/overcome cancer.

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